Tuesday, 17 April 2018

Celebrating People, Places and 18,000 Pledges to Make a Difference

Celebrating People, Places and 18,000 Pledges to Make a Difference


                         

The Dementia Carer Voices team would like to say a huge thank you to everyone who has made a pledge, and everyone we have met along the way so far on our You Can Make a Difference campaign. We are absolutely delighted to have now received 18,000 pledges!


This is a wonderful milestone to reach and would not be possible without the commitment and passion of everyone who attends our talks, reads about our campaign and pledges to make a difference to the lives of people with dementia and their carers. We have reached over 120,000 people across more than 700 talks and have met so many remarkable people so far.
These 18,000 pledges are from a personal perspective so each of them is unique and from the heart. 18,000 people have stopped and reflected on what they can do in their lives to make a difference. And no matter what your role, everyone has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways.
We are really proud to be able to work with the Chief Nursing Officer for Scotland Professor Fiona McQueen (this link will take you away from our website), and the Chief Nursing Officer for England Professor Jane Cummings (this link will take you away from our website), sharing key messages from both and feeding back on the aims and outcomes of the people we have met.
You can read all of the pledges we have received so far on our website, as well as our pledge case studies, most recent publication and 5 Steps to Change resource.
The campaign will continue throughout the year. If you have been inspired to make a pledge yourself, you can email us at dementiacarervoices@alliance-scotland.org.uk We’d love to hear how you plan to make a difference!
Commenting on this huge milestone, our UK Lead Tommy Whitelaw said that

‘it has been a remarkable experience meeting so many inspirational people who do so many incredible things. We are inspired by the pledges and how people have been turning their good intentions into purposeful action.”
ALLIANCE Director Irene Oldfather added that

“these 18,000 pledges demonstrate Dementia Carer Voice’s ability to create a social movement for change by raising knowledge, understanding and awareness of living with dementia whilst promoting person-centred rights-based care to enhance the lives of people living with dementia.”
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Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
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Thursday, 5 April 2018

Ask What Matters - Listen to What Matters - Do What Matters

June 6th is ‘What Matters to You?’ Day. A brilliant initiative founded by our colleagues in Scotland that we at Dementia Carer Voices are proud to incorporate within our You Can Make a Difference campaign, tour and resources. I am very honoured to represent the ALLIANCE and sit on the national steering group.
We absolutely support having a ‘What Matters to You?’ conversation based on the five ‘Must Do With Me’ steps:
  • WHAT MATTERS TO YOU?
  • WHO MATTERS TO YOU?
  • WHAT INFORMATION DO YOU NEED?
  • NOTHING ABOUT ME WITHOUT ME!
  • SERVICE FLEXIBILITY
If we can flip the conversation away from what’s the matter with you to what and who matters to you we feel we will have better conversations, relationships and care.
Asking and listening to what matters informs around 40% of the nearly 18,000 personal pledges we have received today. It also supports many of the case studies that have turned these pledges into purposeful actions.
Last year, for ‘What Matters to You?’ Day we recorded podcasts and we are keen to support more conversations and case studies this year. If you’re interested in getting involved email us at dementiacarervoices@alliance-scotland.org.uk
Your story, my story, all of our stories matter. So please get in touch with the team if you would like more information on our work, campaigns and tour. Let’s all ask what matters, listen to what matters and do what matters.
For more information you can have a look at the What Matters to You website (this link will take you away from our website).
Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “No – one ever asked >” highlighted the transformational impact that listening, kindness and understanding made to his journey as a carer, and the importance of looking beyond a person’s diagnosis to engage with them as an individual.

If you would like to access further information about the Collaborative and to view presentations from the latest learning session, please click here.


In 2011 Tommy produced a short film in conjunction with Alzheimer Scotland. The video, which was later shown at the Scottish Parliament, includes families and carers reading from the letters they sent him during his dementia awareness tour of Scotland’s towns and cities. To view the FILM http://tv.enterprisescreen.co.uk/watch?v=347



 Putting the Care into Dementia Care

This training film is a collaboration between Health watch Essex, staff at Broomfield Hospital and Dementia Carer Voices







Interview for NHS Greater Glasgow and Clyde

 Patients’ Stories Library

The NHS Greater Glasgow & Clyde's Patients' Stories Library for Hospital Staff aims to use patients’ and carers’ experiences to look at how acute services can be improved.
Tommy shared his story with frontline staff working across NHS Greater Glasgow and Clyde, including the Ward staff that cared for his mother at the Southern General hospital. His film interview was also shown across a number of NHSGGC hospital sites during Carers Week 2013 to help raise awareness amongst staff about the importance of supporting carers in contributing to delivering person centred care. http://www.youtube.com/watch?v=36_Y_3y0yXM

Dementia Carer Voices where proud to tour with Healthwatch across Essex back in October 2015.  You can view the blog post and pledges from the few days here. 
Thanks to every one of you who attended each event and the @HWEssex team for arranging the few days.  Below is a new film about the tour with some of the Nurses who attended sharing their pledges made to the Make a Difference Campaign each day. 
HWlarge




 It’s Ok to Ask for Help!

The It’s Ok to Ask DVD produced by NHS Greater Glasgow & Clyde, Glasgow City Council, The Alliance and Alzheimer Scotland uses carers’ experiences to highlight the benefits of using carer support services in Glasgow, and encourages people to ask for help. Tommy Whitelaw, Alliance Scotland, shares experiences of looking after a partner, parent, relative, friend or neighbour with dementia. Other carers tell us about help they get from support services in Glasgow. FILM http://youtu.be/u2BAxSCcic0




'On the Couch' with Tommy Whitelaw filmed interview NHS Scotland Conference June 2015





Speaking Care Inspectorate Seminar 

Published on 7 Nov 2013
Tommy recently spoke to our inspection team to talk about his experiences of caring for his mum Joan Whitelaw, who died last year after living with dementia for several years. He spoke about the difficulties he had getting the right services for his mum at the right time and how this led him to take his dementia awareness campaign "On Tour"




















National Dementia Awareness Week 2014 (England) – NHS Employers Nursing Times - my Filmed interview

To mark National Dementia Awareness Week which runs from 18 to 24 May, NHS Employers the Nursing Times are working with the Alzheimer’s Society to promote resources available to NHS organisations and the NHS workforce.
As part of this activity, they have specially commissioned a short video of an interview with Dementia Carer Voices’ very own Tommy Whitelaw.

You can get more information here on NHS Employers 
This video was made to mark this year’s Dementia Awareness week 





You can click on the image Below to preview the  trailer for a longer film which will be launched on 12th December in NHS Ayrshire and Arran University Hospital Ayr lecture theatre.
make a difference film

Full version of Make a difference with the staff nhsaaa 
Nicola Film Still 2



Wednesday, 4 April 2018

My Name is Tommy,I cared for my wonderful mum Joan

My name is Tommy Whitelaw, and for five years I was a full-time carer for my mum Joan, up until she sadly passed away in September 2012.
At the time my Mum was diagnosed with vascular dementia, I looked at her and thought to myself “it’ll be okay, we’ll get through this.” What I soon learned as her carer, was that dementia was an unpredictable illness which brought many challenges and forced us to adapt to ever-changing routines. Many days we would wake up to discover that everything we had grown accustomed to have suddenly changed again.I wondered whether the struggles I faced were mine and mine alone, and how other carers who had been through the same journey as I was embarking on, had managed to cope. This was the basis behind my first venture in to the world of awareness raising – the‘Tommy On Tour’ campaign, which involved collecting life story letters from people across Scotland caring for a loved one with dementia.
The hundreds of letters I received let me know that the challenges I faced were far from unique to my own situation and I have to say meeting and speaking to others in the same situation was one of the most beneficial things I could have done.
An issue that struck me during my journey caring for my mum was the lack of awareness and understanding of dementia and the way in which we perceive this illness as a wider society.  My door was always open but no one walked through it, people didn’t come to visit us anymore and I truly believe that was down to the stigma surrounding the illness.
Everyone affected by dementia has a unique story to tell and by sharing our experiences we can help to tackle the misunderstandings surrounding dementia and offer hope to people in the same situation.
This is something I am passionate about promoting as I build on my previous awareness raising work, as Project Engagement lead of the Health and Social Care ALLIANCE’s Dementia Carer Voices Project.
The project provides a platform upon which carers can express their views and experiences of caring for a loved one living with dementia, with a view to raising awareness among health and social care professionals, and wider society of its impact on families and the importance of empowering carers in carrying out this difficult but vital role.
A key focus of my talks through the project is to highlight the impact that inspirational health and social care professionals can make to the journeys of carers across Scotland. People who appreciate and understand the unique challenges that dementia brings can be there to prop you up, and I absolutely believe as a carer if I was propped up a little bit with the right help and support, I could have given my Mum the best care and support in the world.
The experience of caring for my Mum undoubtedly brought great challenges, stress, isolation and sadness, but it was a role carried out through love and we enjoyed many touching moments of joy and satisfaction. Those special moments live long in my memory, and gave me a real boost of strength to get through the difficult times, and continue to do so now.
Dementia Carer Voices pledge background
Dementia Carer Voices has now gathered over 10,000  personal pledges as part of the “You Can Make a Difference” campaign. The campaign encourages people to listen to the experiences of people who have cared for a loved one with dementia and to think how they can make a positive difference in people’s lives. The team are delighted to have gotten such a strong response, and would like to take this opportunity to reflect on our journey up until now and how we have gotten to this point.
A fundamental aspect of the campaign has been about involvement. Throughout the UK tour, we have engaged with many thousands of  health and social care professionals, students, MSPs and members of the public, and have noticed a distinct increase in the number of pledges we have received when people are encouraged and supported to do so by colleagues and friends. We would therefore like to ask you to share this campaign, to encourage people you know to get involved and make a pledge to make a difference in the lives of people who have dementia, their families and carers. Through our own dedicated blog site, twitter account and website, the campaign is easily shared, and links people to a range of information.
Pledges can be submitted via email, twitter @DementiaCarerVo or on the blog site, and are also collected at every talk. We would very much appreciate it if you would promote this campaign; the talks and our films and encourage people to reflect on what they can do and how they can make a difference.
Resources
Dementia Carer Voices took the Make a Difference campaign to the Scottish Parliament in October 2014. View the pledges from First Minister Nicola Sturgeon and Paul Gray, DG Health and Social Care and Chief Executive, NHSScotland.
NHS Ayrshire & Arran and the University of West Scotland  (UWS)  were key partners in the ‘#make a difference’ pledges and dementia awareness campaign.  This video includes interviews with First Minister Nicola Sturgeon and Paul Gray, DG Health and Social Care and Chief Executive, NHSScotland, Fiona McQueen (Executive Nurse Director NHS Scotland), Professor Paul Martin (Deputy Principal UWS), Derek T Barron (Associate Nurse Director – Lead Nurse North Ayrshire Health and Social Care Partnership), Janice McAlister (Alzheimer Scotland Dementia Nurse Consultant), Lynn McLaughlin (Senior Charge Nurse).
Newsletter
View the May/June 2015 Dementia Carer Voices Newsletter.  Subscribe to the newslettermailing list.





Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Tuesday, 3 April 2018

Make a Difference 2018 ‘It’s all about people and relationships‘ People .Places and Pledges




The last few years have been quite an incredible journey, ending 2017 at Wilshaw General Hospital talk 667, reaching more than 100,000 people in person, on our make a difference tour across the country.  With 17,000 Nurses, Students, Hospitals, Care Homes, Universities, Colleges and Individuals making pledges and commitments to make a difference In so many ways and settings.
Reflecting over the break and looking ahead to 2018, the theme has been consistent, and I know will continue to be so, that its people who change lives, its people who make a difference over and above policies and strategies, its people who make the difference every day.
This has been reflected within the pledges received and people I feel so lucky to have met on the tour.  Remarkable people, doing remarkable things every day.
We are so very proud to be sharing key messages at talks in Scotland  from Professor Fiona McQueen CNO for Scotland and in England Leading Change adding Value Framework for Nursing Midwifery and Care Staff for Professor Jane Cummings CNO to help support pledges and turning good intentions into purposeful actions.
Someone asked me what did I learn caring for my mum living with dementia, I feel a lesson my mum had been trying to teach me all of my life and maybe should have listened much sooner, that people are amazing, remarkable, everyone has a story to tell and if we take the time to listen, we will find out how remarkable they are, taking time I feel to ask ‘ what matters to you and who matters to you.
We look forward to continuing our make a difference tour across the country, meeting more remarkable people, strengthening existing and building new relationships along the way.
If you would like us  to bring our ‘Make a Difference’ talk to your place of work, please contact us at dementiacarersvoices@alliance-scotland.org

You can read every pledge at the links below

February

06/02/18 Craigielea, People, Pledges, Music, Wishes and Life Stories

16/02/18 Portsmouth Hospitals Launch Pledge Tree

20/02/18 Queen Margaret University, Nursing Students Add Pledges

21/02/18 Abertay University open sessions

28/02/18 The Midlands and East Region LCAV Conference Delegates Add Pledges

 




January


2017 

December 









November 

03/11/17 Portsmouth Hospitals NHS Trust 
06/11/17 Aberdeenshire Health and Social Care Partnerships

07/11/17 New College Lanarkshire

08/11/17  Care at home teams Livingston 

09/11/17 Hospice at Home teams Carlisle and Lakelands 

16/11/17  NHS Lanarkshire Quality Improvement Day



October 2017
04/10/17 City of Glasgow College Pledge to Make a Difference
25/10/17  NhHS Borders District Nursing 
26/18/17 Stirling University 3rd Year Nursing
September 2017
August 2017
July 2017
June 2017
May 2017
April 2017
March 2017
February 2017
January 2017
December 2016
November 2016
October 2016
September 2016
August 2016
July 2016
June 2016
May 2016
April 2016
March 2016
February 2016
January 2016
December 2015
November 2015
October 2015
September 2015
August 2015
July 2015
June 2015
May 2015
April 2015
March 2015
February 2015
January 2015

December 2014
15/16.12.14 Norfolk and Suffolk

November 2014
03.11.14 Online pledges
07.11.14 Burton Hospital
13.11.14  Pledges of the week
24.11.14 The Retreat York
October 2014
13.10.14 More Pledges
27-30.10.14 NHS Highland Tour

September 2014
01.09.14  Teesside University
August 2014
July 2014
June 2014
3/4.06.14 NHS Conference
27.06.14 BCDA Birmingham
May 2014 
April 2014
(08 -10).04.14 NHS Dumfries & Galloway 
March 2014
February 2014
19.02.14 NHS Fife
January 2014
We began the campaign by asking “What does caring mean to you?”
Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Celebrating People, Places and 18,000 Pledges to Make a Difference

Celebrating People, Places and 18,000 Pledges to Make a Difference                           The Dementia Carer Voices team wou...