Tuesday, 26 September 2017

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “No – one ever asked >” highlighted the transformational impact that listening, kindness and understanding made to his journey as a carer, and the importance of looking beyond a person’s diagnosis to engage with them as an individual.

If you would like to access further information about the Collaborative and to view presentations from the latest learning session, please click here.

In 2011 Tommy produced a short film in conjunction with Alzheimer Scotland. The video, which was later shown at the Scottish Parliament, includes families and carers reading from the letters they sent him during his dementia awareness tour of Scotland’s towns and cities. To view the FILM http://tv.enterprisescreen.co.uk/watch?v=347

 Putting the Care into Dementia Care

This training film is a collaboration between Health watch Essex, staff at Broomfield Hospital and Dementia Carer Voices

Interview for NHS Greater Glasgow and Clyde

 Patients’ Stories Library

The NHS Greater Glasgow & Clyde's Patients' Stories Library for Hospital Staff aims to use patients’ and carers’ experiences to look at how acute services can be improved.
Tommy shared his story with frontline staff working across NHS Greater Glasgow and Clyde, including the Ward staff that cared for his mother at the Southern General hospital. His film interview was also shown across a number of NHSGGC hospital sites during Carers Week 2013 to help raise awareness amongst staff about the importance of supporting carers in contributing to delivering person centred care. http://www.youtube.com/watch?v=36_Y_3y0yXM

Dementia Carer Voices where proud to tour with Healthwatch across Essex back in October 2015.  You can view the blog post and pledges from the few days here. 
Thanks to every one of you who attended each event and the @HWEssex team for arranging the few days.  Below is a new film about the tour with some of the Nurses who attended sharing their pledges made to the Make a Difference Campaign each day. 

 It’s Ok to Ask for Help!

The It’s Ok to Ask DVD produced by NHS Greater Glasgow & Clyde, Glasgow City Council, The Alliance and Alzheimer Scotland uses carers’ experiences to highlight the benefits of using carer support services in Glasgow, and encourages people to ask for help. Tommy Whitelaw, Alliance Scotland, shares experiences of looking after a partner, parent, relative, friend or neighbour with dementia. Other carers tell us about help they get from support services in Glasgow. FILM http://youtu.be/u2BAxSCcic0

'On the Couch' with Tommy Whitelaw filmed interview NHS Scotland Conference June 2015

Speaking Care Inspectorate Seminar 

Published on 7 Nov 2013
Tommy recently spoke to our inspection team to talk about his experiences of caring for his mum Joan Whitelaw, who died last year after living with dementia for several years. He spoke about the difficulties he had getting the right services for his mum at the right time and how this led him to take his dementia awareness campaign "On Tour"

National Dementia Awareness Week 2014 (England) – NHS Employers Nursing Times - my Filmed interview

To mark National Dementia Awareness Week which runs from 18 to 24 May, NHS Employers the Nursing Times are working with the Alzheimer’s Society to promote resources available to NHS organisations and the NHS workforce.
As part of this activity, they have specially commissioned a short video of an interview with Dementia Carer Voices’ very own Tommy Whitelaw.

You can get more information here on NHS Employers 
This video was made to mark this year’s Dementia Awareness week 

You can click on the image Below to preview the  trailer for a longer film which will be launched on 12th December in NHS Ayrshire and Arran University Hospital Ayr lecture theatre.
make a difference film

Full version of Make a difference with the staff nhsaaa 
Nicola Film Still 2

Thursday, 21 September 2017

Dementia Carer Voices events over September World Alzheimer's Month 2017

Dementia Carer Voices is holding a series of events and talks to mark World Alzheimer’s Month 2017. World Alzheimer’s Month is an international campaign each September to raise awareness and challenge the stigma around dementia. World Alzheimer’s Month was launched in 2012 and World Alzheimer’s Day is on the 21 September every year. It is coordinated by Alzheimer’s Disease International (ADI) and supported by a range of national Alzheimer’s charities.
2 out of every 3 people globally believe there is little or no understanding of dementia in their countries, according to research undertaken by ADI. World Alzheimer’s Month is an opportunity to recognise dementia as a global problem that requires global action.
To mark this month and the world Alzheimer’s Day in particular, Dementia Carer Voices will be engaging in a wide range of awareness ranging activity. Including,
  • UK Project Lead, Tommy Whitelaw giving ‘You Can Make a Difference’ talks to all first-year nursing students at Scottish Universities. DCV is taking the key messages from the Chief Nursing Officer, Fiona McQueen to all our talks and we are delighted that Fiona will join us speaking to future nurses;
  • four-day DCV tour of Jersey to engage with health and social care professionals providing care to people with dementia;
  • ‘You Can make a Difference’ talks across Ayr throughout September;
  • Launching a pledge tree with our Colleagues at Healthcare Improvement Scotland;
  • Tommy spoke on an expert panel in Northern Ireland Assembly at Stormont about challenges faced by carers in Northern Ireland and across the UK, in the context of an aging population and financial challenges.
If you want more information about any of the events mentioned, or how you can get involved with Dementia Carer Voices, do please email us at dementiacarervoies@alliance-scotland.org.uk

Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Wednesday, 6 September 2017

Make a Difference talks across Universities and Colleges – the class of 2017

As many people take their first steps into nursing and many other areas of health and social care, Dementia Carer Voices are proud to continue our relationships with universities and colleges across Scotland.  We are looking forward to meeting with the class`s of 2017 as they start their journey in to the wonderful profession of caring.
As a continuation of the last 4 years, Dementia Carer Voices will be taking our ‘Make a Difference seminars’ to many 1st year students over September, October and November.
Please see some of the dates confirmed below with more to be added over the next few weeks.
You can also view the inspiring pledges from our previous visits at the link here
  • 05.09.17 Educational Seminar Stirling University
  • 06.09.17 2 Educational Seminars West Lothian College
  • 15.09.17 2 Educational Seminars UWS Ayr with CNO Scotland and Shaun Maher
  • 27.09.17 Educational Seminar UWS Hamilton

  • 04.10.17 Educational Seminar Glasgow City College
  • 06.10.17 Educational Seminar UWS Paisley with CNO Scotland
  • 17.10.17 2 Educational Seminars Napier University
  • 17.10.17 Educational Seminar at Glasgow Caledonian University
  • 25.10.17 Educational Seminar Robert Gordon University
  • 21.02.18 Educational Seminar Abertay University

We have many more dates to add please follow this post for updates on our tour across universities and colleges across Scotland as we meet the class of 2017.
If you would like us to visit a university or college on any of the dates above please contact dementiacarervoices@alliance-scotland.org.uk
Team DCV 🙂
Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Tuesday, 5 September 2017

Thank you 80,000 people, Thank you for the 14,804 Personal Pledges

Thank you 80,000 people, Thank you for the  14,000 personal pledges

  The Dementia Carer Voices team would like to say a massive thank you to everyone who has made a pledge as part of the ‘You Can Make a Difference’ campaign and we are absolutely delighted to have received more than   14,804 pledges! This is an incredible milestone, and is only possible due to the commitment and compassion from everyone who has attended a talk or read about the campaign and made a promise to make a positive difference in the lives of people with dementia and their carers.
The team have been taking the You Can Make Difference campaign to 550 talks to date, reaching over 80,000, staff and students throughout the UK to highlight that no matter what their role, everyone working in Health and Social Care Services has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways. 
The talks involve Project Engagement Lead, Tommy Whitelaw, sharing his own personal experiences from caring for his late mum, Joan, and the experiences of others who have written to him since he went on tour in 2011. The campaign allows staff the opportunity to reflect on these personal stories and make a pledge based on one key message or action that they will take away and apply to their everyday practice to make a difference. 

Irene Oldfather, Director, the ALLIANCE said:
 “This work reaches out and touches the hearts of many people, not least Health and Social Care students and professionals. These interactions are an ideal opportunity for staff to pause and reflect on what is really important to the people in their care.  Make a pledge, make a difference.”

Tommy Whitelaw, Dementia Carer Voices Project Engagement Lead, said: 
“Carers tell us that a little bit of time, listening and understanding can make an unimaginable difference during what can be a very difficult and lonely journeyThe pledges that we have received have been truly inspiring, and we’re looking forward to working with people and seeing those pledges fulfilled.”
How you can make a pledge We launched the ‘You Can Make a Difference’ Campaign in February  2014 and it has been so inspiring to see it grow. The campaign  has really shown the difference that every single person can make, no matter how small it may seem. If you have been inspired to make a pledge , please get in touch and email us your pledge at dementiacarervoices@alliance-scotland.org.uk.
 Your response has been truly inspiring, so from all of us here – thank you. We really can all make a difference. Stay tuned for the rest of 2017, which is shaping up to be a good year 🙂

       You can meet every person and read every pledge via the links below 

You can read  Case Studies on the different ways people are putting pledges into practice at the link HERE                  

September 2017

April 2017

March 2017

November 2016
October 2016

August 2016
July 2016

May 2016
April 2016
March 2016
09/03/16 Hairmyers Hospital create their own pledge tree!
22/03/16 Bolton pledges to make a difference!
24/03/16 Hampshire Hospital Trust pledges!
31/03/16 184 pledges from University of Central Lancashire

February 2016
Bolton pledges to make a difference! https://dementiacarervoices.wordpress.com/2016/03/25/bolton-pledges-to-make-a-difference/ via  
January 2016



December 2015
November 2015
October 2015
September 2015
August 2015
July 2015
June 2015
May 2015
April 2015
March 2015
February 2015
January 2015

December 2014
15/16.12.14 Norfolk and Suffolk

November 2014
03.11.14 Online pledges
07.11.14 Burton Hospital
13.11.14  Pledges of the week
24.11.14 The Retreat York
October 2014
13.10.14 More Pledges
27-30.10.14 NHS Highland Tour
September 2014
01.09.14  Teesside University
August 2014
July 2014
June 2014
3/4.06.14 NHS Conference
27.06.14 BCDA Birmingham
May 2014 
April 2014
(08 -10).04.14 NHS Dumfries & Galloway 
March 2014
February 2014
19.02.14 NHS Fife
January 2014
            We began the campaign by asking 
              “What does caring mean to you?”

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “ No – one ever asked   ” highlighted the transformational impact that ...